Caring for a Spouse: The Overlooked Financial and Legal Realities No One Prepares You For

What happens when love meets life-altering diagnosis and financial pressure? 

For Sandy Moss Moder, it meant stepping into the unknown and documenting every step of the way.

In this episode, I talk with Sandy about her raw and revealing story as a caregiver for her husband battling frontotemporal degeneration. She opens up about the emotional, medical, and financial hurdles she faced—and how her journaling eventually became a published memoir. This conversation shines a light on caregiving, planning ahead, and the power of art and community.

Key takeaways:

  • The early behavioral changes that led to her husband’s FTD diagnosis and the lack of awareness among medical professionals
  • The emotional toll and day-to-day unpredictability of caregiving for a spouse with cognitive decline
  • The financial planning steps she took—including setting up a trust, adjusting Social Security, and building a support team
  • Her process of documenting the disease through journaling, which turned into her memoir
  • The importance of finding the right care facility, asking the right questions, and leaning on senior living advisors
  • And more!

Related: When Women Thrive Financially: The Support Systems That Make It Happen